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Name/scientific name |
GALSULFASE
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Self-financed or subsidized by the Hospital Authority |
Hospital Authority Drug Formulary
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Indications |
Mucopolysaccharidosis type IVA
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body system |
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Galsulfase is a drug used to treat hereditary disorders of keratin metabolism. This rare disease is caused by a deficiency of the enzyme arylsulfatase B in the body. Galsulfase replenishes this deficient enzyme and helps reduce the levels of accumulated keratin in the body, thereby improving symptoms and relieving patient pain. Patients with hereditary dyskeratin metabolism may experience symptoms such as joint swelling, bone deformation, and difficulty breathing.
Galsulfase is usually given via intravenous injection, and doctors will develop a personalized medication plan based on the patient's specific situation and needs. While using Galsulfase, patients may need regular medical supervision and physical examinations to ensure the effectiveness and safety of the drug. In Hong Kong, Galsulfase may be considered a specialty drug and needs to be used under medical supervision. Patients and families should follow their doctor's advice and make sure they use medications as directed to get the best results.
How to use: The drug GALSULFASE is usually injected by a health care provider, usually once a week. Before injecting, make sure your skin is clean and prepare the medication as directed by your doctor. Follow the physician's instructions during the injection process and do not adjust the dosage or stop using it on your own. After the injection, try to avoid excessive movement or heavy pressure on the injection site.
Dosage Guidelines: The starting dose for adults and children is usually 1 mg/kg body weight per week, but the specific dose will be determined based on the patient's condition. The physician may adjust the dosage based on the patient's response and condition, so please report any changes in physical condition to your physician regularly. For pediatric patients, please use the medicine strictly according to the doctor's recommendations and do not change the dosage or usage method at will. If you have any questions, please check with your doctor immediately.
GALSULFASE is a drug used to treat concentrated mucopolysaccharidosis. It is mainly used to improve some functions of the patient's body. However, there may be some side effects when using GALSULFASE, including headache, fever, skin sensitivity, muscle pain and nausea. Some patients may also experience redness, swelling or pain at the injection site. If you experience serious side effects, such as difficulty breathing, chest pain, or allergic reactions, seek help from your doctor immediately. Pay attention to your body's reactions when using GALSULFASE and discuss any discomfort with your doctor.
Drug name: GALSULFASE
Taboo groups:
1. Patients who are allergic to GALSULFASE or have allergic reactions to its ingredients.
2. Pregnant women should use it with caution and under the guidance of a physician.
3. Use by infants, children and adolescent patients should be done under the supervision of a physician.
4. Patients with severe liver dysfunction.
5. Patients with severe renal insufficiency.
6. Patients with severe heart disease.
7. Patients with severe lung disease.
8. Patients with severe central nervous system diseases.
9. Patients with severe immune system diseases.
Before using GALSULFASE, patients should ask their physician for detailed contraindications and use the drug strictly in accordance with the physician's recommendations and prescriptions. If any discomfort or abnormality occurs, discontinue use immediately and seek medical assistance.
Galsulfase
Precautions for use: This drug is only used to treat rare genetic diseases and should be used according to the physician's instructions. It should not be used for other diseases or conditions. It should be supervised and inspected regularly by a physician during use to ensure efficacy and safety. If you have any adverse reactions or questions, please inform your healthcare provider immediately.
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Pregnant women should avoid using GALSULFASE during pregnancy. The safety of this drug in pregnant women has not been established and may affect the fetus. If you are pregnant, be sure to tell your doctor so alternative treatments can be explored.
If you are using GALSULFASE and plan to become pregnant, discuss it with your doctor before becoming pregnant. Your doctor may recommend that you stop using GALSULFASE or adjust your treatment plan to reduce the risk to your fetus.
During pregnancy, be sure to follow your doctor's advice and do not stop taking medications or change dosages on your own. Even if the condition requires ongoing treatment, the safety of the fetus should be prioritized.
If you suspect you may be pregnant, or are considering becoming pregnant, tell your doctor right away so that a treatment plan can be developed that is best for you and your baby. Stay in close contact with your doctor to learn what you should pay attention to during pregnancy.
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